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My Menopause Journey: From Debilitating to Liberating

“Who celebrates or has a day called ‘My Menopause Party Day’? Kirsty Dixon, Founder of Pause for Thought Consultancy, does. From a pivotal lightbulb moment that reshaped her perception of menopause—from a debilitating phase to a liberating milestone—she embarked on a challenging journey to embrace her status as a ‘Postmenopausal Woman’. In this exclusive interview with Taofeekat Adigun of Sheffield Occupational Health Advisory (SOHAS), Kirsty candidly shares her challenging yet empowering journey on menopause and is on a mission to raise awareness.”

Let’s start from the beginning. When did you first hear the word ‘menopause’ from your GP, and how did you initially perceive it?

Kirsty: The first time the word menopause was mentioned by my GP was at the age of 44 (now 56).  At that time, my symptoms were so mild that I can’t even remember why I went to the GP.  I was offered antidepressants, which I turned down as they were not that bad.  Even with the mention of the word, did I look into it?  Naah!  Why not?  Well, because at school, we were told we would go through ‘the change’ in our 50s, our periods would stop, we might get hot flushes, be a bit grumpy, and put on weight. Well, quite frankly, if that was all there was to it, I could cope with that, and I believed what my teachers told me!  I never gave it any more thought or did any research. Mistake number 2 (the first mistake was believing my teachers). My symptoms weren’t that bad, and they would soon pass, right?  Wroooooong.

What were the misconceptions you had about menopause?

Kirsty: Reliable research data tells us that one in four will sail through menopause with nothing more than a last period, with perhaps the odd other symptoms like a hot flush or two.  However, one in four people can have a tough time with symptoms, which can have an impact on their day-to-day life.  I was definitely one of the latter. Without a doubt, my naivety and lack of menopause understanding are what made my journey a tough one for four years.  For four years, I felt so alone. I was going mad.  No one else was talking about the same thing, so it had to just be me, surely?  I couldn’t admit how I was really feeling because people would think I couldn’t do my job.  I thought this, so why wouldn’t they?  No one could help me.  Luckily, I had my husband to speak to a bit, and he was a proper lover.  I remember him saying to me one day, when I was in floods of tears for no reason, “I want my old Kirsty back.” I could not believe that menopause could have the level of impact it was having on me.  I often hear people say that menopause robs them of themselves.  Did that happen to me?  Yes, only because I did not understand menopause and what was going on in my body.  As soon as I had my lightbulb moment, which I will talk about later, my whole journey changed.  I now say, ‘Thank you, menopause, for making me the more confident, stronger, creative, don’t take no s*** person I am today, and I love it.

So what has the journey been like before the lightbulb moment….

Kirsty: For five years, it drifted along quite happily with no real changes, then literally, what felt like overnight at the age of 49, BANG.  It hit me like a ton of bricks.  My confidence went down to the point where I told myself I couldn’t do my job anymore.  I was useless. My memory started getting really bad, my brain would shut down to the point where I couldn’t remember my name. My anxiety and stress levels went through the roof for no reason, I got light-headed when exercising, I had heart palpitations and dizziness, and I was so much more emotional than usual.  I made no secret of this, and various suggestions were offered—high or low blood pressure and thyroid—but never the word ‘menopause’.  This got worse over two months, until one day at work, I burst into tears and told my manager I had no idea what was wrong with me, but I couldn’t do it anymore.  After blood tests, I was told it was all menopause-related and started HRT.  Luckily, HRT kicked in quickly and I returned to work two weeks later, telling everyone it was all down to blooming menopause

You mentioned a ‘lightbulb moment’ that changed your perspective. Can you share what triggered this realisation and how it transformed your journey?

Kirsty: It was only when, by chance, I read an article on menopause and thought, “Now that sounds familiar.” So I read and researched more.  With every article, the lightbulb grew brighter and brighter. Then it came.  Eureka!  It is menopause.  I need to stop beating myself up.  It is perfectly normal. I am not going mad, it is not just me, and I am sooooo not alone!  Once I stopped fighting and accepted it, my whole journey changed.  If I’d researched sooner, I honestly believe my mindset going into this natural stage of my life would have been very different. My experience would have been so much better.  I would have been better prepared and could have made lifestyle changes, which could have helped.  Knowledge is power.  What word do I think of when I hear the word menopause now? Liberated. Not many say that.  It’s a bit different from the word I used to use, which was debilitating.  Something I hear so often.  I have made it my mission to raise awareness and shout it from the rooftops to anyone who will listen.  If I can stop one person from having a similar journey, it is all worth it. 

“What word do I think of when I hear the word menopause now? Liberated. Not many say that.  It’s a bit different from the word I used to use which was debilitating”

After accepting menopause, what became different?

Kirsty: Not only did my mindset change at that point, but also that I had ALLOWED menopause to ‘change’ me.  I no longer realised what my values and beliefs were. What is really important to me?  So I went on a wonderful journey of discovery.  I started with a grief recovery programme.  Not only the grief of losing my dad and other relatives in a short space of time but also my own personal grief in my body.  I did some psychometric tests which explained, after all these years, why some ways of learning didn’t work for me, why reading is not my preferred way, why I shoot off the starting blocks on a task and head straight to the finishing line without so much as a thought of how I would get there!  A lot of this helped me in my ways of working, but I also went on a journey to discover what was still hindering me in life from my childhood experiences.  I went onto a really fun reflective programme which helped me understand that I AM WORTH IT.  This was so powerful and even more enlightening.

Interesting! What positives have you found and how did it contribute to your personal and professional growth?

Kirsty: I’ve not let menopause stop me.  At 52, in the throes of fighting perimenopause and having a very poorly dad, I started an apprenticeship to have a new career as a Learning & Development Practitioner (a trainer).  I lost count of how many times I questioned why on earth I changed careers while going through what I was, but I did it.  I passed!  I asked if I could do my work-based project for my final assessment, on menopause awareness.  I got the go-ahead, and for the first time in my working life, I did something that gave me enormous job satisfaction.  Through this, I created and delivered workshops and talks about menopause to staff and managers.  Put initiatives in place to help others.  I never believed I would start my own business but here I am.  Not only one business but two after being made redundant.  As I said earlier, I have never been more creative in my life.  I have passed my coaching qualification and gained more meaningful qualifications during my menopause journey than when I was at school.  Happy days.

Looking back, what advice would you give to yourself or other women navigating perimenopause that could have made the journey smoother?

Kirsty: I often get asked the question about how we know what is down to menopause and what is down to other things.  For some things, we may not know.  What I know now is that regardless of what it was, I needed to be kind to myself and stop beating myself up over it.  Do I still have symptoms?  Even in postmenopause, yes and I may have until my dying day, but that is ok.  The great thing is that I have listened to and understood my body so well now that I know when something is menopause-related.  I can look back now and pinpoint which was which, but that is only because of my self-awareness of ‘me’.  When I have a brain fog day, a bad memory day, or an emotional day, I know it will end.  This is ME now.  I have the next 10, 20, 30, 40, and maybe even 50 wonderful years ahead of me, as a postmenopausal woman.  How exciting!

Inflammatory Bowel Disease Wellness Action Plan

Earlier in the week we did a presentation at an event on Inflammatory Bowel Disease (IDB) which was hosted by a patient and clinician led group who want to raise the profile of the disease and what help there is available.

We are asked if we could produce some information that patients can use on returning to work after a period of sickness absence. What we did was work with patients and clinicians to put together a IDB wellness action plan. The feedback we got from people who attended the event, liked it and thought it would make it easier for IBD patients to return to work and keep them in employment. You can download below.

Statutory Sick Pay and why it’s most likely driving Presenteeism in the UK

When I speak to employers of all shapes and sizes about sickness absence and the effect it has on productivity, they hardly ever talk about presenteeism, either in its physical or virtual forms. Maybe they read the article that came out some time ago that said that presenteeism had all but disappeared….. The data we have at SOHAS shows that it’s alive and well in both forms and it could be increasing.

I put together the data below some time ago for a different article that didn’t get published on the blog site. It might be slightly out of date, but it is good at comparing rates of SSP across Europe. Here are the stats:

What does the data show us about SSP?

Statutory Sick Pay in the UK;

  • You can get £109.40 a week Statutory Sick Pay (SSP) for up to 28 weeks.
  • If you’re eligible, you’ll be paid SSP for all the days you’re off sick that you normally would have worked, except for the first 3 days.
  • Average weekly pay in the UK in February 2023 was £638 for full time work or £596 for regular work (ONS).

SSP equates to 18% of the average wage compared to 34% when it was introduced in 1983.

If you compare this rate with other European countries, the UK is ranked 40th out of 42, as shown in the table below.

European rankCountryMinimum sick payMaximum sick payMaximum period
1Iceland100%100%2 days for each week worked
2Norway100%100%52 weeks
3Luxembourg100%100%89 weeks
4Denmark100%100%30 days + 22 weeks
5Austria50%100%78 weeks
6Germany70%100%84 weeks
7Finland70%100%44 weeks
8Switzerland80%100%103 weeks
9Monaco€146.67 per day / 90% salary€146.67 per day / 90% salaryDetermined by employee contract
10Montenegro70%100%65 days
11Lichtenstein80%80%104 weeks
12Belgium25.88100%52 weeks
13Bosnia and Herzegovina80%80%52 weeks
14Belarus80%100%150 days
15Albania70%80%28 weeks
16Slovenia80%80%30 days
17Sweden77.60%80%52 weeks
18Croatia70%100%Unlimited
19Netherlands70%70%104 weeks
20North Macedonia70%90%30 days
21Bulgaria70%80%78 weeks
22Latvia75%80%52 weeks
23Romania75%75%40 weeks
24Serbia65%100%30 days
25Hungary60%70%54 weeks
26Estonia70%70%26 weeks
27Poland70%100%31 weeks
28Spain60%75%78 weeks
29Lithuania62.06%100%13 weeks
30Czech Republic60%72%56 weeks
31Cyprus60%Varies upon social insurance46 weeks
32Portugal55%75%156 weeks
33Russia50%100%Determined by a doctor
34Andorra53%66%156 weeks
35Greece50%100%Length of employment dependent
36Italy50%66%26 weeks
37France50%50%26 weeks
38Slovakia25%55%53 weeks
39Ukraine50%100%5 days
40United Kingdom£109.40 per week£108.40 per week28 weeks
41IrelandNo legal minimum sick pay100%Determined by employee contract
42Malta€420.30 per month.€420.30 per month.22 weeks

Here are some examples of how SSP equivalents work in other countries.

Sweden

Sweden companies usually provide sick pay instead of the usual wage for the first two weeks an employee is ill. After two weeks, workers can apply for Försäkringskassan’s illness benefits. Sweden’s employees can receive between 25% and 100% of their salary for a maximum of a year.

Norway

Norway offers sickness benefits for up to a year. Workers that still cannot work after this time might receive additional assistance. Employers will cover the first 16 days.

The European Commission’s Employment, Social Affairs & Inclusion determines the amount paid to sick employees based on their salary from the previous three months. They might receive up to 100% of their pay for at least 31 days.

Denmark

According to the European Commission, the maximum amount of sickness benefit per week that Danish employees are entitled to, is DKK 4,550 (£512.37). This calculation is based on the employees’ weekly hours and average hourly income over the previous 3 months. As a result, workers receive up to DKK 120.54 (£13.91) hourly compensation. This may extend up to 22 weeks or longer, depending on the situation.

Germany

Germany follows similar rules as other countries connected to the European Commission.

Workers may receive sick pay during the time when a medical expert has confirmed an inability to work. This could occur for about 78 weeks over a three-year period per sickness. An employee might receive additional paid sick leave time under certain conditions, including new illnesses.

What are the rates of sickness absence in the UK and how does that compare to other European countries?

  • In 2022 there were 185.6 million working days lost to sickness absence in the UK. This is an average of 5.7 days off sick per employee per year.
  • By comparison in Germany (a country, that is on average 16% more productive than the UK) lost 18 days off sick per employee per year.

The UK has the 4th lowest average number of employee sick days in Europe.

What does having such a low rate of SSP mean in the UK?

If you look at the figures above, then it seems that having a much lower rate of SSP isn’t a problem, if the average UK worker only takes a few days off sick a year. However, the issue in the UK appears to be that workers are coming into work whilst they are ill and are also using their holiday entitlement when they are unwell. This masks the real level of sickness absence, some of which will be work-related.

Presenteeism and Leaveism are not on the radar of most employers, where the only metric they record is the time employees are off sick. These issues are contributing to lower productivity and efficiency rates in the UK compared to other countries. This may be the reason why German employees take nearly three times as many days off sick but are still more productive than UK employees. Cary Cooper suggests that Presenteeism costs employers twice as much as sickness absence. CIPD (2018) also suggest that a third of UK employees have used annual leave instead of taking time off sick (Leaveism).

However, a survey conducted by the CIPD in 2021, does suggest that employers (including SMEs) are concerned about SSP, with 62% agreeing that the rate is too low.

In their report ‘Too ill to work, too broke not to’ Bond and Braverman (2018) argue that being on SSP creates an ‘income shock’, which can have a three fold impact of, exacerbating mental health conditions and prolonging recovery, encouraging employees to return to work from sickness absence too quickly or to not take the time off at all and finally, people can get stuck in a destructive cycle of sickness absence, worsening health and debt, where they lose their employment and some fall out of the labour market all together. I think that if the same report were to be run today, I suspect that there would be more people in the destructive cycle talked about above.

It could be argued that having a low rate of SSP, along with the 3-day qualifying period is one of the reasons why UK employees are coming into work when they are sick; they just cannot afford to be off sick from work. Those employees who do take time off sick from work are significantly financially impacted, which contributes to poorer health outcomes and impacts on the job market. 43% of workers would go into debt or be unable to pay their bills within two weeks of claiming SSP. 3 in 5 employees said that the reduction in impact from SSP had a negative effect on their mental health. Again, I suspect that this will now be higher than when I originally wrote the article.  

The rate of SSP in the UK drives further economic inequalities and marginalises disadvantaged groups further. 17% of workers (who are the lowest paid and most vulnerable) do not quality for SSP at all. In turn, 70% of employees who do not qualify for SSP are women. In the UK occupational sick pay schemes concentrate mostly on higher paying sectors, so those in low income or insecure roles are only eligible for SSP (if eligible at all, due to their working hours). Women, ethnic minorities, and disabled people are the biggest victims of the SSP crisis.

So, while this isn’t an academic paper, I think it’s reasonable to say that presenteeism is being driven in part by the low rate of SSP in the UK. The cost of living crisis has also had an impact, but it looks like there are employees who are unwell, who a few years ago would have been signed off sick by their GP, are coming into work. I don’t think that this is helpful for the employee or for the employer.

So, what we could to improve the issues around SSP? Here are some suggestions:

  • Bring back the Percentage Threshold Scheme (PTS) This was abolished in 2014 to pay for the failed Fit for Work pilot and then never reinstated. This allowed employers to reclaim part of the cost of paying SSP. It wasn’t perfect, but it meant for small organisations, they could afford to partially backfill posts for staff who were off sick. It did have a sort of a comeback during the pandemic and then disappeared again. The cost of PTS was around £40m per year before it was abolished. Change it and bring it up to date to make it responsive to the needs of employers. 
  • Pay SSP from day one and scrap much of the qualifying requirements; it makes no sense for someone on the minimum wage not to claim it from day one. It discriminates against and disadvantages the most vulnerable employees. 
  • Increase the rate of SSP……£437.60 a month does not pay the bills for anyone.
  • Redesign SSP to reduce the equality disparity for women, people with disabilities and certain ethnic communities, when they are off sick from work
  • Look at the role of the insurance industry can play in bringing effective products to the market that are affordable for small businesses. I’ve looked and spoken to insurance brokers and the products on offer are not aimed at small businesses.  
  • Support employers (especially micro or small employers) to think about health. At SOHAS, we are seeing a growing disconnect between employees and employers, around the support employees need maintain their health at work, and what employers are prepared to do to give them the right kind of support. For the majority of employees we give advice to, the adjustments they need to improve their workplace health are quite simple and often don’t cost a lot of money to implement. If more employers engaged with their employees about health and tried to adjust, then the issues about SSP are going to be reduced.

ADHD and Workplace Adjustments

In this blog, SOHAS Adviser Emma Hobson gives some practical advice on how to support employees with ADHD and provides some useful resources

ADHD and Workplace Adjustments

SOHAS is steadily seeing more patients who have an Attention Deficit Hyperactivity Disorder (ADHD) diagnosis, who are waiting for a diagnosis or who believe that they have ADHD [self-diagnosed]. This increase is reflected nationally and locally throughout the partner services we work alongside.

Many of these patients have waited many years for a formal diagnosis and often have suspected for much of their lives that they may be struggling with an undiagnosed condition. Similarly, I have patients who were not aware that they might have ADHD and so their diagnosis or the suggestion of a diagnosis comes as a surprise. I am seeing an increasing number of parents who have decided to embark on the diagnosis route themselves, due to displaying similar traits as their child, who has received an ADHD diagnosis.

The NHS suggests that the symptoms of ADHD can be split in to two areas;

  1. Inattentiveness (difficulty concentrating and focusing)
  2. Hyperactivity and impulsiveness

Most people have symptoms that fall into both areas but not everyone will do so. Patients who have Attention Deficit Disorder rather than ADHD, can often go undiagnosed as their symptoms are not so obvious. There is a lack of research about ADHD in adults and symptoms often become more subtle or better managed/masked, as people age.

Feedback from the patients we work with, and from their employers, is that ADHD in adults seems to be a misunderstood condition, especially in a workplace setting. Most employers do not know how to support somebody with ADHD and most employee support services, such as Occupational Health, have little evidence-based guidance to advise employers about how best to support their employees with ADHD.

This needs to change, as adults with ADHD are more likely to lose their job, be stressed at work and be less productive than their neurotypical counterparts. There is also evidence to suggest that they have an average lower household income, which impacts on quality of life and affects their whole family.

I find the positives of having ADHD are often forgotten in these processes, where there is focus on improvement or someone’s ability to ‘fit in’ to what might be considered ‘normal’ working practices. Employees with ADHD are individual (and should be treated as such) but they are often creative, focused, innovative, flexible, detail driven and their input adds value rather than detracts from this, in the workplace.

When supporting an employee with ADHD, I often find that small changes can go a long way to improving wellbeing and supporting performance at work. Adjustments should be considered with or without a formal diagnosis and although people with ADHD may share similar traits, adjustments should be made on an individual basis, taking into consideration the individual’s role at work. Adjustments could include:

  • Having a structured day with flexibility
  • Regular feedback – increased 1:1s
  • Provide written information
  • Reduction of memory burden – lists, breaks down of tasks, reminders and prompts
  • Supporting hyperfocus on tasks
  • Removal/support of admin hurdles that might stop the whole job getting done, timesheets, expenses form etc
  • Stimulation – avoiding boredom and having a good ‘job fit’ to prevent this
  • Environmental considerations – lighting, noise, temperature, working from home/hybrid working, headphone, separate office space etc

It is likely that if the employee has ADHD then they will be covered by the Equality Act 2010, which means that employers have to think about the above as reasonable adjustments. However, it makes sense to adjust without thinking too much about whether the employee is covered by the law or not.

This is not an exact science.  With many patients that I support with ADHD, we embark on a ‘trial and error’ approach to adjustments with the support of tools, such as a Wellness Action Plan which you can find here: https://sohasworkplacehealth.com/2023/07/27/a-new-wellness-action-plan/ or a workplace disability passport. These are used to record agreed adjustments, review their effectiveness and then make changes when things don’t go as planned or hoped.

For more information, please see the following;

www.nhs.uk/conditions/attention-deficit-hyperactivity-disorder-adhd/symptoms/

www.adhdfoundation.org.uk/wp-content/uploads/2022/03/An-Employers-Guide-to-ADHD-in-the-Workplace-Scottish-ADHD-Coalition-1.pdf

www.adhdandyou.co.uk/assets/pdf/adhd-employers-guide.pdf

adhdatwork.add.org/impact-of-adhd-at-work/

adhdaware.org.uk/what-is-adhd/getting-nhs-diagnosis/right-to-choose/

www.gmb.org.uk/sites/default/files/neurodiversity_workplace_toolkit.pdf

www.ncbi.nlm.nih.gov/pmc/articles/PMC7543022/

Technostress – How can we manage it’s impact?

I think it’s fair to say that technologies such as AI, automation and digitisation are beginning to change working conditions across a broad range of jobs. We’ve seen job roles including call centre workers, copywriters and music producers being augmented or replaced. While you can argue whether this is a good or a bad thing, new technologies are creating new circumstances for organisations, businesses, and individuals, as well as new challenges and problems companies and employees.

SOHAS is beginning to give people advice on the increasing introduction of AI, automation, and digitisation into their jobs within our job retention service. People are concerned that new technologies are affecting their psychological workplace health and they are being stressed by the technological elements of their job, which results in Technostress.  Until a few weeks ago, I hadn’t heard of the term “Technostress”. When I first heard it mentioned I thought it might have been a name of a Kraftwerk song, but the term was first coined in China in the early 2000’s and I think we are going to hear the term being used more widely in the future.

Technostress is anxiety, tension, or distress caused when a person is overwhelmed by new technology. It occurs when they are unable to adapt and learn to use technology in a healthy, productive way.

While we believe the increasing introduction of AI, automation and digitisation into more jobs is going to be positive, there are some challenges for organisations who want to go down this route. For clarity here are some definitions

  • AI – a system that shows “intelligent” behaviour, that can perceive its environment, take its own decisions to achieve a specified goal and can develop its own capabilities, mainly based on large amounts of data.
  • Automation – machines (mechanical or digital) that perform work according to specified algorithms
  • Digitalization – the use of digital tools in work tasks.

And some examples of their roles in the world of work:

  • The widespread use of chat bots on websites around customer service roles
  • A supermarket ordering stock using a computer model of trends and past history rather than a manager deciding what to order.
  • The use of Video technologies for working from home.

I think most of us have experienced technostress at some time, in my case trying to order a part for a computer from a supplier where I had to ask “can I speak to a human being” because the bot couldn’t relate a part number to the part I was looking for.

So, what can be done when companies are looking to introduce new technologies if they are going minimise the impact on their employee’s mental health and wellbeing?

I think a key area that organisations often struggle with is about the design of a job role. Whether that’s the initial design or making sure that the role is updated in line any changes to someone’s job role. How many of us have a job which is out of date when you compare what you do now and what it is says on your job description

When we give advice to people who want help on their workplace health issues, we are often told that people don’t feel that they have sufficient control of their job role. The Goldilocks principle comes in here, as there is evidence that people don’t want too little or too much control in their job, they want something in the middle.

So, could giving employees a role in how a job that is designed and implemented when it involves AI, automation, and digitisation, be a way of minimising technostress?

I think it could, when technostress can be caused by employees that are unable to adapt and learn to use technology in a healthy, productive way.

While it’s easy to say “give the employee a role in job design” how can you do that?

I think the answer can be found in job crafting. Job crafting is a term that not that many people are familiar with, but it is something that lots of people actively do without relating it to the term. Here’s the definition:

Job crafting is a means of describing the ways in which employees utilise opportunities to customise their jobs by actively changing their tasks and interactions with others at work. Breaking down job crafting, there are two components that illustrate how this could be done.

  • Task crafting: employees modifying their tasks by changing levels of task variety, adding, or removing tasks, or amending how tasks are completed.
  • Skill crafting: employees acquiring new skills or enhancing existing ones to improve technology competence.

Adopting these principles could help in help to minimise any impact that AI, automation and digitisation may have on employee’s health and wellbeing.

While automation and digitisation of jobs and roles have been around for a long time, AI is what employers focus appears to be on. I’ve spoken to people who are using AI that enables them to work more efficiently and to increase the quality of their work output. If you want advice on work and health issues from SOHAS, are you going to end up talking to bot? No, you aren’t, but we are already using AI in delivering our advice services and this will increase over the next few months.

AI, automation and digitisation are going to increasingly more prevalent in the world of work and we should embrace them, but their introduction has to be thought through and implemented in the best way possible or in the future we are going to create another layer of issues that will affect employee’s productivity and their health and wellbeing.

Menopause Support Plan

We have been asked by women and employers about what is a good way of supporting women in workplace on issues around the menopause.

We’ve found that this support plan can be useful in identifying what kinds of reasonable adjustments are needed in the workplace to keep an employee at work. The plan can be filled out by the employee or together with their line manager and placed on their personnel file so it is accessible as a record of the kind of help is need to maintain someone’s workplace wellbeing.

We can provide one to one advice to women who live in Sheffield and help and support SME’s who want to engage with their employees about women’s reproductive health issues that are affecting their work. If you are an employer or employee, it’s easy to get in touch us, go to our website www.sohas.co.uk and use the “can we help you” tab to send a message to our secure email address and we will get in touch with you asap

Common Women’s Reproductive Health conditions

As we started our women’s wellbeing project in partnership with Heeley Trust, we realised that people don’t have a good understanding of women’s productive health issues. We thought it would be useful to give some basic information on the 4 most common issues with some links to further information.

The project which runs until April 2025, provides help and support to women and employers on women’s workplace wellbeing. We can provide one to one advice to women who live in Sheffield and help and support SME’s who want to engage with their employees about women’s reproductive health issues that are affecting their work. If you are an employer or employee, it’s easy to get in touch us, go to our website www.sohas.co.uk and use the “can we help you” tab to send a message to our secure email address and we will get in touch with you asap.

Health Issues

PCOS: polycystic ovary syndrome is a common condition that effects a women’s ovaries work. The 3 main features of this condition are:

  • Irregular periods as the ovaries don’t regularly release egg known as anovulatory in the processes of ovulation.
  • Excessive androgen – high levels of the “male” hormone in the body which can result in excessive facial or body hair.
  • Polycystic ovaries- ovaries get enlarged and have fluid filled sacks that surround them.

Some common symptoms of this condition that can affects some women are:

  • Irregular periods / painful periods
  • Difficulty getting pregnant
  • Weight gain
  • Thinning hair or hair loss
  • Oily skin and acne
  • Depression and anxiety
  • Mood swings or low mood.

PCOS is also associated with an increase risk of developing health problems such as type 2 diabetes and high cholesterol. PCOS is related to abnormal hormone levels in the body including high levels of insulin as many women with PCOS have insulin resistance hence making their bodies produce higher levels to combat this. This also happens in overweight or obese patients with PCOS thus increasing the risk of the other health problems.

You can get support and guidance from http://www.verity-pcos.org.uk/

Menopause- This is a condition that occurs after women stop having their periods due to reduced hormone levels. Usually is found to happen when women reach the age of 45-55 however can sometimes occur earlier naturally, due to surgery such as hysterectomy where a women’s ovaries and uterus are removed, cancer treatment like chemo or a genetic reason however sometime the reason can be unknown.

Women can also have perimenopause this is when women have symptoms of menopause without stopping their period.

Some common symptoms of both perimenopause and menopause condition that can affects some women are:

  • Anxiety
  • Mood swings
  • Brain fog
  • Hot flushes
  • Irregular periods
  • changes in mood – such as low mood or irritability.
  • changes in skin conditions, including dryness or increase in oiliness and onset of adult acne.
  • difficulty sleeping – this may make you feel tired and irritable during the day.
  • discomfort during sex.
  • feelings of loss of self

You can get support and guidance from https://menopausesupport.co.uk/

Endometriosis- In this condition tissue that is similar to the lining of the womb grows in other places such as the ovaries and fallopian tubes. This condition affects women of all ages. The long-term effects of this condition can have significant impact on women’s lives however treatment is available that can help with symptoms.

Some common symptoms of this condition that can affects some women are:

  • pain in the lower back and pelvis and tummy
  • periods pain that stops them doing everyday task and jobs
  • pain during sex
  • vomiting or feeling sick
  • pain peeing and opening bowls
  • constipation, diarrhoea or blood in your wee and faeces
  • difficulty getting pregnant
  • heavy periods where you may need multiple pads, tampons or change of clothes
  • depression and anxiety.

You can get support and guidance from https://www.endometriosis-uk.org/

IVF- invitro fertilisation is more of treatment rather than medical conditions. This is a treatment for women who struggle to conceive naturally due to some of the conditions mentions about. During this condition the egg from a woman and the sperm from the father are medically removed and fertilised together in a lab and placed back in the woman’s womb. This can be done with parents own egg and sperm or with donated egg and sperm.

Someone women can have the treatment on the NHS however other need to pay for it them self with cycles costing up to £5000.

The 6 stages of IVF:

  1. Suppressing the natural cycle
  2. Helping your ovaries produce extra eggs
  3. Monitoring your progress and maturing the eggs
  4. Collecting egg
  5. Fertilized eggs
  6. Transferring the embryos

This treatment can cause patient to have: anxiety, stress, mood swings Passing a small amount of clear or bloody fluid shortly after the procedure — due to the swabbing of the cervix before the embryo transfer, breast tenderness due to high estragon levels, mild bloating, mild cramping and constipation.

You can get support and guidance from https://fertilitynetworkuk.org/

Please note that we have no relationship with any of the websites that we given links to in the blog post.

Endometriosis Information and Resources

What is endometriosis?

Typically affecting women between puberty and the menopause, endometriosis is a long-term, chronic condition in which tissue similar to the lining of the womb grows in other parts of the body, including the fallopian tubes and ovaries. In the UK, it is the second most common gynaecological condition, with around 10% of women affected.

Not all women with endometriosis experience all of the below symptoms, and while some can suffer severely, some may not have any noticeable symptoms at all. Common daily symptoms include:

  • pain in the lower abdomen or back (or pelvic pain)
  • fatigue
  • intense period pain that prevents normal activity
  • pain when passing urine or faeces during periods
  • nausea, constipation or diarrhoea during periods
  • blood in urine or faeces during periods
  • difficulty getting pregnant

Another common symptom of endometriosis is heavy bleeding during periods, which could mean the need to use multiple pads or tampons, visiting the toilet often, or bleeding though to clothing.

Recent surveys show that:

  • 40% of women with endometriosis are worried it could threaten their job security
  • 27% report they have missed out on a promotion
  • 55% say they need time off work “often” or “very often”
  • 54% have said that endometriosis has had a negative impact on their income
  • 87% say their long-term financial situation has been affected by the condition
  • 17% of women with endometriosis leave work permanently.

Despite the condition affecting 1 in 10 women in the UK, research carried out by EndometriosisUK showed that 54% of people as a whole do not know what endometriosis is, increasing to 74% of men.

There is therefore a clear need for increased education and awareness about this condition. The more an employer knows about endometriosis, the better they will be able to understand what effect this can have on employees and the support they may need. Importantly, it will also help them understand that such employees will likely need to be supported on a long-term basis

Under UK employment law, employers have a duty to make reasonable adjustments to support workers with a disability or long-term health condition. Endometriosis is considered a disability under the Equality Act 2010 if it has a substantial and long-term adverse effect on a person’s ability to carry out normal day-to-day activities.

Employers can play a crucial role in supporting employees with endometriosis by implementing reasonable adjustments tailored to their needs. These adjustments can vary widely due to the individual nature of the condition, but some common strategies can be applied across different work environments, including office settings, retail, and remote work.

Some examples for an office setting include:

  • Flexible Working Hours: Allowing employees to start later or finish earlier can help them manage their symptoms more effectively
  • Remote or Hybrid Working Options: Providing the option to work from home can significantly benefit those with endometriosis, reducing the need for commuting and allowing for a more comfortable working environment
  • Special Equipment: Ergonomic office equipment, such as adjustable desks or chairs, can help reduce discomfort
  • Access to a Quiet Rest Area: A place where employees can take a break and use a hot water bottle if needed can be beneficial

In a retail setting, where standing for long periods is often required, reasonable adjustments could include:

  • Frequent Breaks: Allowing more frequent breaks for rest and medication can help manage pain and fatigue
  • Shift Adjustments: Modifying shift patterns to shorter shifts or allowing for more flexibility in scheduling can accommodate varying energy levels
  • Provision of a Seating Option: Where possible, providing a stool or chair for use during quieter periods can help

For remote work environments, adjustments are more focused on flexibility and communication:

  • Flexible Scheduling: Allowing employees to work during hours when they feel most productive can help accommodate fluctuating symptoms.
  • Regular Check-ins: Maintaining open lines of communication can help managers stay informed about their employees’ needs and make further adjustments as necessary

General Adjustments Across All Environments

  • Medical Appointment Leave: Offering time off for medical appointments without using annual leave is crucial
  • Awareness and Training: Educating managers and co-workers about endometriosis can foster a supportive work culture. This includes training on how to offer support and understanding the impact of the condition
  • Policy Adjustments: Developing or revising policies to specifically address chronic conditions like endometriosis can ensure consistent support.

Some examples of reasonable adjustments that can help include:

  • regular 20 min rest breaks
  • pacing of tasks to avoid burn out
  • reducing workloads /- planning ahead for project timeframes / deadlines around flare up or monthly cycles
  • modifications of work tasks should be in consultation with the employee
  • reducing exposure to high stress situations
  • providing greater support like putting instructions in writing
  • modifying the work area, for example noise control, light / temperature adjustments
  • Access to restroom facilities – consider this with employees who may work in the construction industry, traffic control or mining – providing portable, clean and safe toilets may be a solution

Example of an Employer Policy on Endometriosis

Objective

To support employees suffering from endometriosis by creating an inclusive, understanding, and flexible work environment that acknowledges their unique needs, thereby enhancing their well-being, engagement, and productivity.

Scope

This policy applies to all employees within the organization, with a focus on providing support to those diagnosed with endometriosis or experiencing symptoms associated with the condition.

Policy Details

Awareness and Education

  • Conduct awareness programs to educate all employees about endometriosis, its impact on individuals, and the importance of a supportive work environment.

  • Offer flexible working hours and the option to work from home to accommodate medical appointments, manage symptoms, and ensure comfort.
  • Consider job sharing, part-time roles, or modified duties as necessary to support employees’ health and work-life balance.

Workplace Accommodations

  • Allow for necessary workplace accommodations, such as more frequent breaks, access to a private rest area, and permission to use comfort aids like hot water bottles.
  • Provide ergonomic workstations or equipment to help reduce discomfort for employees standing or sitting for long periods.
  • Provide ergonomic workstations or equipment to help reduce discomfort for employees standing or sitting for long periods.

Health and Well-being Support

  • Facilitate access to counselling and support groups for employees dealing with endometriosis, recognizing the mental and emotional impact of chronic conditions
  • Offer health benefits that cover treatments and therapies related to managing endometriosis, including surgical options, if applicable.

Communication and Support

  • Encourage open communication between employees and their managers about their needs and accommodations without fear of stigma or discrimination
  • Where possible appoint Endometriosis Champions within the workplace to advocate for and support affected employees, fostering a culture of understanding and inclusion.

Review and Feedback

  • Regularly review the effectiveness of the policy and accommodations provided, seeking feedback from employees to ensure their needs are being met
  • Update the policy as needed to reflect new insights, employee feedback, and advancements in the understanding and treatment of endometriosis.                                                                                                                        

Links for more information on endometriosis

https://www.endometriosis-uk.org

https://endometriosis.net/living/work-accommodations

https://www.endofound.org/a-guide-to-supporting-your-employee-with-endometriosis

https://www.elanzawellness.com/post/endometriosis-in-the-workplace-navigating-challenges

https://www.myendometriosisteam.com/resources/balancing-work-and-endometriosis

Lead Poisoning Prevention Week

The health issues of being exposed to lead in the workplace

Lead Poisoning Prevention Week isn’t the snappiest title for what is an issue that I think for most people is not on their radar. Maybe this is because people know lead is metal that should be treated with caution, but as it’s sometimes can be found in the home and in the workplace.

A google search found that the Lancet Planetary Health estimated that, in 2019, 5.5 million people died because of cardiovascular disease caused by lead poisoning, about three times the number killed by lung cancer. While these figures are concentrated in the world poorest countries, it does show that lead is still a problem and here in the UK. More worrying, lead, which is a neurotoxin, can more easily cross the blood-brain barrier at younger ages, where it can severely affect mental development.

A search through the SOHAS records showed that issue of lead poisoning has rarely come up in the advice we give. I spoke to an environment health officer at Sheffield City Council and found that they hadn’t dealt with the issue for some time either.

Here are a couple of short case histories, one from SOHAS and the other from Environmental Health

 A middle-aged person who came to see a SOHAS adviser with a mental health issue. The adviser found that they worked in a small manufacturing company where lead was used in a manufacturing process.  The person was a smoker. The adviser asked them to describe the processes used and asked whether they were washing their hands on regular basis, which they said they weren’t. The adviser found that they were not having regular blood tests as they should have under the Control of Lead at Work Regulations. A subsequent blood test did show he had elevated blood lead levels, which may have been caused by the transfer of lead dust from their fingers to their mouth.   

A middle-aged person came to the attention of environmental health who had a cut to his finger that was wasn’t healing, their job meant that they collected pieces of lead off the workshop floor to be disposed. They had not been tested for lead blood levels.

A subsequent investigation found that the business had not followed the HSE the Control of Lead at Work Regulations 2002 (CLAW) which place a duty on employers to prevent, or where this is not reasonably practicable, to control employee exposure to lead. 

The business was taken to court, prosecuted and fined.

Here is some information for anyone who is working with or around lead

You can be exposed to lead by breathing it in, swallowing it, or absorbing it through your skin.

Breathing lead dust and fumes

  • Lead fumes and lead dust do not have an odour and may not be seen in the air, so you may not know you are being exposed.
  • Lead fumes are produced during metal processing when metal is heated or soldered. Lead dust is produced when metal is being cut or ground, or when lead paint is sanded or removed with a heat gun. It can also be produced by firing handguns and rifles.
  • Your body absorbs higher levels of lead when it is breathed in compared to swallowing it or absorbing it through your skin. Lead fume particles are smaller than lead dust; this means lead fumes can penetrate deeper into your lungs, resulting in higher exposure.

Swallowing lead dust

  • Lead dust may not be noticeable. It can settle on food, water, clothes, and other objects.
  • If you eat, drink, or smoke in areas where lead is being processed or stored, you could swallow lead dust without knowing. You can also swallow lead dust if you don’t wash your hands before you eat or touch your mouth.
  • Lead can leave a metallic taste in your mouth, though some people may not notice this.

Absorbing lead through the skin

  • Some studies have found that lead can be absorbed through skin.
  • Absorption can also happen if you handle items contaminated with lead and then touch your eyes, nose, or mouth.
  • Lead dust on your clothes, shoes, or hair can be hard to notice.

Lead poisonings can happen if you are exposed to high levels of lead over a short time period (also called an acute exposure). When this happens, you may experience:

  • Metallic taste
  • Abdominal pain, nausea, vomiting
  • Diarrhoea or constipation
  • Dehydration, headache, exhaustion, irritability, weakness
  • Appetite loss
  • Memory loss
  • Pain or tingling in your hands or feet

Symptoms may occur slowly, so health professions may overlook lead poisoning as the cause as other things can also cause many of these symptoms.

Exposure to high levels of lead may cause:

  • Anaemia
  • Kidney and brain damage
  • Death

Here are some resources that give more information from a statutory point of view

https://www.hse.gov.uk/pubns/books/l132.htm

https://www.hse.gov.uk/lead/health-effects.htm

https://www.hse.gov.uk/lead/employershaveto.htm

https://www.hse.gov.uk/lead/mostatrisk.htm

The institute of specialist surveyors and engineers who can provide help on issues on lead in the workplace

A New Wellness Action Plan

SOHAS has been using wellness action plans (WAP) since 2009 when they were identified in the Perkins review as an effective way for employees to articulate how their mental health could be affected by their work.

Now have developed a new version that allows employees to give more information on their mental health to their employer to keep them in work. This version takes our learning from the people we’ve helped to complete a WAP and takes some information from the Allied Professional Fit Note.

We recommend that employees complete the WAP in written form that can be put into an employees HR file as it avoids the issue if the employee has a change of manager. We think this version of the WAP a useful step on from the existing WAP that is currently available.

Autism and Employment – a guide for employers

As SOHAS and Sheffield University start our research on what are the barriers to employers hiring more autistic people into the workforce and would a co-designed intervention aimed to increase the employment of autistic be feasible and acceptable to employers. I thought I’d share the initial piece of work that lead to our current research. It’s not just for employers, we think it’s useful for employees as well.

If you live or work in Sheffield, we can give you help and support to make sure you stay in employment. Ring us on 01142755760 on go to https://www.sohas.co.uk/help/patients/ and tell us what kind of help you need.